A New Venture

It has been a while since I posted on my blog, and nothing has progressed with my “journey”, but there are some new developments. So, I have been involved with this research group at UAB for PCOS and that is going good. I have lost 20 lbs on the diet and exercise plan they have me on. I feel better about myself, and feel like I am making some progress in me being a healthier, happier person. I have really been thinking about everything that has happened over the course of 5 years, and the number of people that I have come into contact with along the way. There are so many people around me that have been diagnosed with PCOS or have been struggling with infertility. I really feel that God gave me this heart, and soul that I have for a purpose. I really want to help other women/couples that have been through or are going through the same thing that we have. I want to give them a voice, and to be able to share knowledge with someone that may not know what to expect and help them cope with all the feelings that they have. I searched for a local infertility support group. The closest one that I could find is in Homewood. I have contact RESOLVE (The National Infertility Association), and would like to start a peer led support group. RESOLVE is going to help me market my group, and get it started. I am very excited about the possibility of turning this negative into a positive and making a difference. I just want to find HIS purpose and plan in all of this. If no one shows up to the meetings then at least I can say that I tried. So, we’ll see how it goes.

When will that day come

When will the day come that you will here,

When will the time come too long I fear.

Too long to wait to see your sweet face,

Will it take too long and waiver my faith.

When will the day come that I can feel you grow,

When will the day come I may never really know.

They say it gets easier that I should let you go,

But deep down I know I will never say so.

I know that you are waiting in Heaven above,

To come see me and daddy to let us wrap you in love.

To say I give up will never be true,

I will never stop fighting for the day I get to meet you.

I know in my heart that to me you belong,

Waiting for the day we get to bring you home.

When will that day come I hope that  it’s soon,

But until that day we will be preparing for you.

Feeling Like A Lab Rat

I went for my very first tests for the Clinical Research Study for PCOS on Monday. The first two tests were RMR (resting metabolic rate)  (measures how much energy you burn while resting) and DXA (bone density). For the first (RMR) test I was in a hospital bed for about 40 minutes, 30 of which is spent with what I like to call and astronaut’s helmet over my head. Let me just say this, I don’t think that I am claustrophobic, but I have to say that having this little helmet like thing over your head for 30 minutes will make you a little anxious. At first I was a little uneasy, thinking what if there’s not enough oxygen, what if I forget to breathe right. Then, after my initial small panic I realized if I’m going to make it I’m going to have to let my mind go elsewhere. So, I begin to focus on the only thing I have in my vision, the ceiling tiles. I begin to count the number of tiles on this ceiling, and then when that gets old, I count the number of cracked or disfigured tiles, after about 60 seconds I am done, and left with the realization that this could possibly be the LONGEST 30 minutes of my life.  After about 10-15 minutes of this constant mental battle with myself, my eyelids start getting really heavy. I had to get up at 4 that morning to get to UAB on time. I hadn’t been able to sleep much the night before because I like a dummy decided to take a little afternoon nap on Sunday (I cant do this and still sleep at night, I can barely sleep at night without a nap). Anyway, so my eyelids are so heavy that I spend the remaining 15+ minutes focusing on trying to stay awake. Then I have to go pee on a stick to make sure I am not pregnant. So, she gives me the pregnancy test, and I got to the PUBLIC bathroom where this woman in the next stall is handling her business. Those who know me know that I struggle with peeing in public places or just peeing in general (its psychological, I know). So, I am trying to concentrate and I don’t do well peeing on Q, and I’m really trying to focus because this woman in the next stall is making her presence known, and I’m just trying to get this done. So, I finally manage to pee just enough for the test to work. She then takes me to this other room when I lie on table and this thing that looks like a MRI/Scanner runs this arm along my body (DXA Test). It was over and done and on to the next thing.

So, then Friday I go in for the MEAL CHALLENGE test that last 5 hours.  I fast the night before nothing to eat or drink except water from 7pm on Thursday until noon on Friday. First of all I got a little lost trying to find my way to where I needed to be for the testing. I turned into the wrong parking deck, then parked in the faculty parking area, where a very nice lady helped me find my way to the correct elevator. They took me to a small room with a bed, & a tv. She goes to try and find a good vein to start an IV and she cant find a strong enough vein in my arm so she has to put it in my hand. The vein in my hand was less than cooperative the whole day. My hand got to cold so nothing would come out, EVERY Time she went to take blood she had to pull on my hand to get the blood to come out. By the 3^rd hour my hand was so sore. Anyways, so after the first hour they made me drink 2 bottles of ensure within 5 minutes, this was not to bad and helped with the hunger pains, then we moved on to taking blood every 10 minutes for the next 3 hours, the last hour was just 2 blood draws and then at 12 it was over. The nurse was nice enough to give me a map with instructions on how to find my way back to my car, which I didn’t have any trouble finding. When I went to leave the parking deck I made a wrong turn and spent the next hour trying to find my way back to the interstate. After pulling over a few times, driving from one end of town to the other, a call to my husband who was unable to lead me the right way, a failed attempt to pull up navigation on my phone because in the middle of my dilemma it wanted me to UDPATE, needless to say I was on the brink of a meltdown. I some how got turned the right way and found my way back to the interstate. I was supposed to go back @ 5 pm that day for an MRI but called & cancelled. By the time I got home I had a sick headache from not eating, and probably from the stress of the day, I layed down and took a 4 hour nap, and that was that. Atleast next time I will be a little more prepared.

New Year, New Possibilities

I am embarking on a new journey or at least a small detour or side ride or whatever you want to call it. A friend’s mom has been reading my posts and sent me some information about some research things they have going on at UAB. I inquired about 2 of them but only one replied. A group at UAB in the Nutrition & Wellness Group have put together a research study on PCOS & how insulin affects or is affected by this disease. There is no medication involved just good old hard work & diet, which is exactly what I need after all the time that I have spent ‘medicated’. They will do some blood draws, MRI’s, & other testing to get thorough information for their study. They are supposed to give me a diet plan to follow, and will show me what exercise I will need to do. Throughout the process they will monitor several things. I know that it is not necessarily the ideal situation but I am gonna look at it from a positive view point. They are going to supply me with the knowledge of the best workout & diet plan for someone with my “condition” and help me lose weight. I will have a dietician, exercise specialist, and all I have to provide is a little bit of my time, a little blood, & some testing. I am thinking that in a small way I can help other women out there in the future. They are trying to find better ways to treat this illness, and better ways to help women get pregnant. I am just trying to find my place in all of this, and maybe this is the beginning. I am sure that I have little to no idea as to what I am in for, but the good thing is I can drop it at any time. I am hoping that this is the start to a better, brighter year full of happiness, & maybe somewhere a long the way, the baby (babies) that we have been waiting for. Lets see what 2012 has to offer!